Parkinson’s Specialist Nurses

A big thank you to all those who have completed the Parkinson’s UK Survey either on-line or by post about local services and how they affect you.   These surveys are going to provide very helpful evidence that we can use in our campaign for better services.

The good news is that Watford General Hospital have now recruited a Parkinson’s Specialist Nurse to work with both in-patients and out-patients.  Mandy Jackson, previously of Langley House has been successful in her application and we believe she will be starting her new role in September. 

The bad news is that Andrew Forsyth, Parkinson’s Specialist Nurse also currently based at Langley House, has resigned and will be leaving for a job closer to home in Welwyn Garden City, we believe also in September.  He will be sadly missed.   This will leave Langley House with two vacancies to fill and we are currently waiting for them to provide a statement about their recruitment plans and cover arrangements which we will add to our website when received.

Meanwhile we would like to make two points:

1. Parkinson’s UK Helpline – don’t forget that Parkinson’s UK have Specialist Parkinson’s Nurses who can speak with you on the telephone. They often have to ring you back but they will do so.  Their number is 0808 800 0303 and they are open Monday –Friday 9am-7pm and Saturdays 10am-2pm

2. PLEASE give your feedback to Herts Community NHS Trust. We are constantly being told that the Trust believes the Parkinson’s Nurse Services at Langley House are at a satisfactory level because they receive no complaints through PALS (Patient Advice and Liaison Service).  We say that we believe that people don’t know about this process and / or they just put up with a poor service without complaining – however they say that need to have evidence to demonstrate what people are experiencing.  

Therefore if you believe you are suffering because of your inability to access a Parkinson’s Nurse at Langley House please give this feedback to the Trust and explain to them the impact this has on you.  They advise that all complaints are treated with complete confidentiality and will not adversely affect your care

Here are their contact details: Phone: 01707 388036    

Postal address:
Patient Experience Team
Hertfordshire Community NHS Trust
Howard Court, Tewin Road
Welwyn Garden City AL7 1BW

There is also information here about NHS Patient Advice and Liaison Service (PALS) and making a complaint about your service: